Resource Hub
Living with hereditary cancer risk can feel overwhelming, but you don’t have to navigate it alone. I’ve gathered trusted resources, organizations, and tools—many shared directly by the inspiring guests on The Positive Gene Podcast—to help you find support, information, and hope.
Whether you're newly diagnosed, supporting a loved one, or simply seeking to understand more, this hub is here to empower you with knowledge, connection, and encouragement for the road ahead.
Family Support, Research, and Connection Resources
Tools to help families with inherited cancer risk find answers, connections, and community.
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MyFaultyGene — A nonprofit providing support and resources for individuals with hereditary cancer risk, helping families navigate genetic testing and diagnosis.
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ConnectMyVariant — A resource connecting individuals and families with inherited mutations to distant relatives to expand cascade testing and preventive care.
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ICARE Registry — A research and education registry advancing knowledge about inherited cancer and providing valuable information for families and healthcare providers.
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Mental Health Guide for Cancer Patients and Families - Resource guide provided by Mesothelioma Hope to help cancer patients access the mental health support and resources they require.
Empowerment and Communication Tools
Strengthening your voice as a patient, caregiver, or advocate.
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Dr. Marleah Dean Kruzel’s Communication Strategies — Tips for talking about genetic testing, family risk, and health decisions effectively (featured on The Positive Gene Podcast).
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Dr. Fred Gandolfo’s Insights — REAL GI Doc Show - Board-certified gastroenterologist sharing practical, patient-centered advice on GI health, screenings, and navigating the healthcare system..
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Caregiver Resources from FORCE — Practical advice for caregivers and support systems facing hereditary cancer risk challenges.
Advocacy, Awareness, and Education
Organizations leading the way in hereditary cancer education, support, and policy advocacy.
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FORCE (Facing Our Risk of Cancer Empowered) — National nonprofit offering education, peer support, advocacy, and research support for hereditary cancer communities.
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Alive And Kick’n — Working to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.
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Lynch Syndrome Awareness & Education - Working to increase awareness, improve education, expand access to trusted resources and empower those to take action against hereditary cancer risk.
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BREM Foundation to Defeat Breast Cancer - Champions early detection of breast cancer to improve health outcomes
Emotional, Creative, and Spiritual Inspiration
Resources to nourish hope, faith, and inner strength along the journey.
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David Curtis' Music — Christian musician, cancer survivor, and guest on The Positive Gene Podcast sharing faith-based encouragement through music.
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L.I.F.E. with Marina - master yoga teacher and motivational speaker, and guest on the podcast sharing yoga's healing touch for overcoming anxiety and strengthening spirit.
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Meditation for Calm and Resilience — Guided meditation episodes from The Positive Gene Podcast to help process big emotions and find peace during difficult times.
Visual Learning and Decision Support Tools
Resources designed to make complex health information easier to understand and act on.
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Genetionary by Mark Hicks — Free visual infographics explaining genetic testing and hereditary cancer terms clearly and accessibly.
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FORCE XRAY (eXamining the Relevance of Articles to You) — Evidence-based reviews that help patients and families make sense of cancer research headlines.
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FORCE’s Surgery Decision Tool — An interactive online guide to help individuals weigh surgical and surveillance options for hereditary cancer risk management.
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MOTA - Supporting women with BRCA1 and BRCA2 mutations with personalized guidance, expert connections, and a caring community.
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Free Individual Breast Cancer Risk Assessment from Breast Imaging Matters. No appointment required. No insurance needed.
Insurance, Legal Protection, & Financial Assistance
Protecting your rights and navigating the financial side of genetic care.
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The Genetic Information Nondiscrimination Act (GINA) — A federal law protecting individuals from discrimination based on their genetic information in health insurance and employment.
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Patient Advocate Foundation — A nonprofit offering direct case management services, financial aid, and guidance for patients facing insurance denials or medical debt.
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Financial Assistance Programs from FORCE — Resources that provide grants or reduced-cost services for genetic testing, preventive surgeries, and cancer treatment.
