top of page

Frequently Asked Questions

Do you have a medical background? No, I am not a medical provider. I am a passionate advocate, previvor, and podcast host focused on empowering people with hereditary cancer risk. I love research and doing the hard work to truly understand my own risk and how to manage it. I rely on credible, well-vetted resources and expert advice to guide my decisions and provide valuable insights to my audience. My goal is to help others navigate the complexities of hereditary cancer risk with support and resources.

What is your podcast about? My podcast, The Positive Gene Podcast, focuses on empowering individuals who are living with hereditary cancer risk. Through candid discussions with experts, advocates, and individuals on similar journeys, I provide insights and practical guidance on managing cancer risk, making informed decisions, and living life fully with awareness and resilience. I share personal stories, research, and expert advice to help listeners feel empowered in their health journeys. You can find the podcast on Apple Podcasts, Spotify and all major streaming platforms. Visit the podcast page at the top bar to listen or read the transcript.

Do you do public speaking? Yes, I am an experienced speaker, and I love connecting with audiences to share my story and insights. I focus on topics such as managing hereditary cancer risk, navigating life as a previvor, and empowering growth at every stage of life. Whether speaking to medical professionals, corporate leaders, or community groups, I aim to inspire and motivate others to take action for their health and well-being. I am also available for keynotes, workshops, and panels. You can learn more about my speaking experience on my podcast and through my advocacy work.

What books do you recommend for learning more about hereditary cancer or health? Here are some books that have been influential in my own journey: - Living with Hereditary Cancer Risk: What You and Your Family Need to Know (A Johns Hopkins Press Health Book) - by Kathy Steligo, Sue Friedman, Allison W. Kurian - Life in Asymmetry by Raychel Kubby Adler - The Immortal Life of Henrietta Lacks by Rebecca Skloot - The New Menopause: Navigating Your Path Through Hormonal Change with Purpose, Power, and Facts – by Mary Claire Haver MD

What organizations do you recommend to learn more about hereditary cancer? I recommend the following reputable organizations for learning more: FORCE (Facing Our Risk of Cancer Empowered) – facingourrisk.org This organization focuses on individuals with hereditary cancer risk, offering education, support, and advocacy. My Faulty Gene – myfaultygene.org This is another excellent resource for those navigating hereditary cancer risk and seeking support.

What is a hereditary cancer mutation? A hereditary cancer mutation is a genetic alteration that increases a person’s risk of developing certain cancers. These mutations are passed down through families, often affecting multiple generations. Common hereditary cancer syndromes include BRCA1 and BRCA2 mutations linked to breast and ovarian cancer and Lynch syndrome, which increases the risk for colorectal and other cancers.

What is a previvor? A previvor is someone who carries a hereditary cancer mutation but has not developed cancer. Previvors take proactive steps to manage their cancer risk through regular screenings, surgeries, and lifestyle changes. The term represents individuals who are living in the space between diagnosis and prevention, making informed decisions to lower their risk of developing cancer.

I’m newly diagnosed, where do I begin? I recommend starting with my READY Framework, which offers guidance for those newly facing hereditary cancer risk or newly diagnosed. This framework helps you organize your thoughts, make decisions, and take actionable steps to manage your risk. You can listen to my episode dedicated to the READY Framework for more details.

How can I support your work? You can support my work by subscribing to my podcast, sharing it with others, or joining my Patreon page, which helps cover expenses like hosting, recording, and promotion. Your support allows me to continue providing valuable content and resources for individuals navigating hereditary cancer risk.

bottom of page