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Resource Hub

Living with hereditary cancer risk can feel overwhelming, but you don’t have to navigate it alone. I’ve gathered trusted resources, organizations, and tools—many shared directly by the inspiring guests on The Positive Gene Podcast—to help you find support, information, and hope.

 

Whether you're newly diagnosed, supporting a loved one, or simply seeking to understand more, this hub is here to empower you with knowledge, connection, and encouragement for the road ahead.

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Colorful DNA Helix

Family Support, Research, and Connection Resources​

Tools to help families with inherited cancer risk find answers, connections, and community.

  • MyFaultyGene — A nonprofit providing support and resources for individuals with hereditary cancer risk, helping families navigate genetic testing and diagnosis.

  • ConnectMyVariant — A resource connecting individuals and families with inherited mutations to distant relatives to expand cascade testing and preventive care.

  • ICARE Registry — A research and education registry advancing knowledge about inherited cancer and providing valuable information for families and healthcare providers.

Breast Cancer Awareness Cupcakes

Advocacy, Awareness, and Education​

Organizations leading the way in hereditary cancer education, support, and policy advocacy.

  • FORCE (Facing Our Risk of Cancer Empowered) — National nonprofit offering education, peer support, advocacy, and research support for hereditary cancer communities.

  • Alive And Kick’n — Working to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.

Connect the Dots

Visual Learning and Decision Support Tools​

Resources designed to make complex health information easier to understand and act on.

Hands joined together

Empowerment and Communication Tools​

Strengthening your voice as a patient, caregiver, or advocate.

Yoga Pose

Emotional, Creative, and Spiritual Inspiration​

Resources to nourish hope, faith, and inner strength along the journey.

Nurse assisting patient

Insurance, Legal Protection, & Financial Assistance​

Protecting your rights and navigating the financial side of genetic care.

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